Wednesday, April 28, 2010

Special Needs: Links…Autism, Apraxia

April is Autism Awareness Month, if you were unaware. I have been doing a lot of reading about Autism this past month: read two book, several articles and websites. I would like to pass along to you some of the information I have come across. Maybe this information will be helpful to another family.


(1) What Is The Difference Between Apraxia and Autism?

I have been questioning how one knows that a child with Apraxia does not have Autism. They are both neurological disorders “which can occur in a child independently of one another, or together in the same child.” (1) How are they distinguishable? How is a diagnosis made for apraxia but not autism? How is a diagnosis made for both in the same child? When reading the above article, I came across the following which was a light bulb moment for me. I have a bit more understanding. “While autism's symptoms can impact and impair many different systems, behaviors, and thought patterns, apraxia occurs when the child struggles to plan and carry out voluntary physical movements” (1) “When a child has only apraxia it is only the motor functioning and not the social and emotional skills that are impacted, as is often not the case with autism.” (1) Those two statements helped to clarify things a bit more for me. To read the complete article, follow the linked title above.



(2) Apraxia and Autism

Apraxia symptoms can be similar to autism symptoms. (2)
  • Behavior problems stemming from frustration
  • Hypotonia
  • Gross motor problems
  • Fine motor problems
  • Sensory integration and self-regulation problems
  • Motor planning issues
  • Hand dominance delayed or mixed
  • Unusual vocal inflection and pattern of speech

To help further clarify the difference between apraxia and autism, I read the following: there is an “absence of a need for order and routine as well as lack of social impairment in individuals who are diagnosed with apraxia.” (2) Clearly, apraxia displays many symptoms similar to autism, but again, the big difference is if your child is socially appropriate. That leads to another question for me, what is socially appropriate? Do all children on the autism spectrum display the same type of deficit in social appropriateness? Or, is there a difference in this symptom from child to child? To read the complete article, follow the linked title above.


(3) Mild Autism

I must admit, even though I personally know a mom who has child with autism, I truly did not understand the full scope. The autism spectrum is broad; mild to moderate symptoms. Through reading and gaining first hand information, I am learning that a child with autism does not necessarily have to fit the classic symptoms. Even so, the consistent symptom is a deficit in social interactions. A classic symptom of avoiding social interaction does not necessarily apply to children on the mild end of the autism spectrum. “They may thus fail to maintain appropriate physical distances while talking to others, or may broach a sensitive or inappropriate topic of conversation.” (3)
Reading the above linked article, Mild Autism, had some interesting insights.


(4) Here are some common myths on autism

As I mentioned above, there are classic symptoms that people associate with the autism spectrum disorder. However, there are many myths that also occur. I found the above linked article to be interesting. It debunked a few ideas that were floating around in my mind.


(5) Pervasive Developmental Disorder-Not Otherwise Specified
(6) Different Levels of Autism

“This is a diagnosis given to a child who exhibits impairment in the development of reciprocal social interaction, verbal and non-verbal communication, or when autistic tendencies are present.” (5)
From what I have been able to gather, the diagnosis of PDD-NOS is for those who do not fully fit the label of autism, in the classic sense, but do display other autistic behavior most especially in the social interactions, and communication. As I read in another article; “primarily made when the symptoms do not fall within any of the existing specific categories of autism.”
(6) The above linked articles goes into a bit more depth about the levels of autism.


(7) Cutting Through The Psychobabble: Diagnosing Autism and PDD-NOS per the DSM-IV in Layman’s Terms

This article is very informative. It gave a fairly clear picture for the criteria differences as to how a child is diagnosed with autism vs PDD-NOS.



(8)
Autism Symptoms – Checklist for Parents

I think the thing to keep in mind, overall, it is not just one symptom that makes a diagnosis for autism, rather, it is the overall picture of the child – the display of several symptoms.


(9) Characteristics of Autism and the Pervasive Developmental Disorders (PDD

Overall, this is a good overview of autism. It is a FAQ article, answers questions such as: What are the pervasive developmental disorders? What is the difference between autism and PDD-NOS? How is autism/ PDD-NOS diagnosed? What are the areas of concerns?
Those are just a few of the questions addressed in the above linked article.



As I already mentioned, I have read two books that related to autism. I have also read one book in relation to apraxia. All three books are excellent, I highly recommend them.

The Late Talker
Specific for apraxia. I cannot emphasis enough as to how important I think this book is for parents who have a child with apraxia.

Daniel Isn’t Talking
A fictional story that tells about one mother’s journey in learning the diagnosis of autism and the help that is needed.

Marcelo in the Real World
An incredible book that tells a a very effective story of on
adolescent’s life as he deals with the challenges and gifts that one can have with Asperger Syndrome.



IsaiahEyes[5] Apraxia
While I have mostly spoken about autism, I must not neglect apraxia. This is a neurological disorder that can effect children with autism, it is important to know of this disorder. If you have a child that was diagnosed with apraxia, I urge you to learn all that you can. The more knowledge you have, the more you are able to
understand. Knowledge is power, it helps you to obtain the appropriate services for your child..

Apraxia Kids
Childhood Apraxia of Speech
Apraxia-Kids Blog

Let’s Talk: Special Needs, part three – Apraxia, Resources
This is a post that I wrote. You can read this for further information regarding apraxia.



Monday, April 26, 2010

Greener Grass by Caroline Pignat

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Greener Grass
by Caroline Pignat
copyright 2008
Published in US in 2009
Pages: 267 (pb)
Source: Library Copy

Back Cover:
Kit Byrne’s family struggles as the Great Famine enters its second year. Landlords raise rents and tumble cottages leaving thousands homeless and overcome with hunger and disease.
When her family is slated for eviction, fourteen-year-old Kit will do anything she can to help her family. But will is cost Kit her soul?


First Sentence:
They say home is where the heart is. I believed that, once.


Greener Grass is a powerful story which told of the horrors that face those who lived in Ireland during the years of famine (1845-1850). I have not read a book about this subject matter, it was eye opening. I can not even imagine the struggle and desperation that these families felt. This story was brought home through the eyes of Kit, an innocent girl of 14 who grew up very quickly as the hardship of famine struck her family. I admire Kit's strength and courage. I understood her desperate moments, but was very glad that she did not succumb. As Kit grew, changed,and matured; I found myself become attached to her. I rooted for her, I desperately wanted things to turn around for Kit. I will not tell you what does occur for Kit, I will say, I am glad I read this story. It is a story with tragedy, but it is also a story of hope.

In my library system, this book is placed in the YA category, while it is a good read for those in the YA age range (and above, if I do say so myself), I do believe this book could also suit those as young as 10.
I am going to encourage my girls to read this story, hope they will as this book is very much worth the read.

I want to know more of Kit, of her life. I am glad that there is a sequel, Wild Geese, and it is due for release this coming September.



Side Note: For those of you who like the book cover to reflect the story, I will admit that the red cloth tied on the post eluded me, but once done reading, I understood.

My 10-year old, EJ, has just brought the book into her room. She says that she is going to start the read tomorrow (Wednesday, 4/27/10). I hope she likes, I shall see.


Other Stuff:
Greener Grass Educator’s Guide
While looking for some information on the author and her next book, I came across a study guide for Greener Grass. The ex-homeschooling mom that is in me thinks that this is very cool. Actually, regardless if you homeschool or not, study guides have the potential to offer some ideas for book discussion with your child. I like to glean from them, use the ideas, or not.



Sunday, April 25, 2010

It’s Monday! What Are You Reading? April 26th


WhatAreYouReading

What Are You Reading?

This fun weekly event that is now being hosted by Sheila at One Person’s Journey Through a World of Books.
For this event, participants post about books completed last week, currently reading and plan to read for this coming week.

Check out One Person’s Journey Through a World of Books to see what others are reading.


Last week was busy every day, it sailed by rather quickly.
For all those who are interested,
my 6-year old is doing fine, the surgery went well.. Today (Monday) he goes back to school. I am hoping he will not want to nap, it seems that this past week he could not make it through the day without a nap.

This week will be no less busy, IJ has a few doctor appointments plus my work, and a few other personal things all equals a busy week.
I hope your week will be as busy or slow as you would like.



Last Week : Reviewed

A Game of Thrones by George R.R. Martin
I am not going to ruin my review by telling you too much here. I will tell you, I loved this book! My review is
here.

Marcelo in the Real World by Francisco X. Stork
This is a wonderful story. I can most assuredly say that this book was well worth the read, it did keep me up to the wee hours. My review is
here.

The Amaranth Enchantment by Julie Berry
Yay, I found out where I first heard about this book. The review that had me wanting to read this story. Thanks
Nise for posting about this book. My review is here.



Last Week: Finished

Greener Grass by Caroline Pignat
Last week I said that I thought it would be fantastic if this turns out to be a good young adult read. I am happy to report, this is a good young adult read, actually, I think this book can be read from 10 years old and upward. I will post my review soon.

A Clash of Kings by George R.R. Martin
Did I say last week that I thought this book was fantastic, and so far the series is outstanding? Yep, I did. I am soooo right! :)
My review will be posted soon.



This Week’s Line-Up:

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First Light by Rebecca Stead
I am reading this book based on the recommendation of my friend, Jody. She reads lots of children books, middle-grade reads. She is currently making her way through the Newbery Medal Award winners, thus this book. No, it is not a
Newbery Medal Award book, but the author won the award for this year, When You Reach Me.


Eternal on the Water by Joseph Monninger
I read
Teddyree’s review and knew that I would like to read this book. Finally I have it'; I am going to read it. I hope I like it as much as Sheree.

Marcelo in the Real World by Francisco X. Stork
Nope, your eyes are not deceiving you. It is true, I have already read this book, and
posted a review. I started reading this book last Friday, and that is the day I take my photo for this post. I really did not think I would be done with the read by now let alone have a review posted. Indeed though, I finished the book. Actually, I read it into the wee hours of Saturday morning, could not put it down. Hmmm…maybe that was why I was tired at work on Saturday. lol. :D
This was a wonderful book.



Ongoing Reads: This is for those reads that I do not need to read straight through, or I do not need to read to complete straightaway.

Practicing Hospitality by Pat Ennis and Lisa Tatlock
I bought this book last year, read a few chapters, set it aside. When I saw that
Carrie over at Offering Hospitality was a book discussion of Practicing Hospitality I knew that I needed to join in. I kid you not, I lack the gene for natural hospitality. I am awkward with the whole matter, I am uncomfortable. This is a deficit for me, I avoid the whole thing. God knows this, and I am being literal here. I am hoping that through reading this book, I will pick up at least one or two ideas, tips, suggestions that will enable me to be a bit more free-flow with offering hospitality to those in my life, entering my life, passing by my life. Check out the Offering Hospitality blog, they have some simple, yet effective ideas.

Every Woman’s Guide To Cycling by Selene Yeager
I am half-way through this book. I did not read it at all last week; I may not read it this week. I keep it on the list because it remains in my current reading pile. Who knows, I may finish this book this week. Probably not. :)




What are you reading this week?




Marcelo in the Real World by Francisco X. Stork

_DSC0159

Marcelo in the Real World
by Francisco X. Stork
Copyright 2009
Pages: 312 (hc)
Source: Library copy
Read for the
Autism Awareness Challenge

Book Description:
Marcelo Sandoval hears music no one else can hear--part of the autism-like impairment no doctor has been able to identify--and he's always attended a special school where his differences have been protected. But the summer after his junior year, his father demands that Marcelo work in his law firm's mailroom in order to experience "the real world." There Marcelo meets Jasmine, his beautiful and surprising coworker, and Wendell, the son of another partner in the firm.
He learns about competition and jealousy, anger and desire. But it's a picture he finds in a file -- a picture of a girl with half a face -- that truly connects him with the real world: its suffering, its injustice, and what he can do to fight.


First Sentence:
”Marcelo, are you ready?”


I have heard good things about this book. I was curious, but at the same time hesitant about reading this book. Obviously, I went forth and read. For that, I am very glad.

I was immediately drawn to Marcelo as he narrated his story. I was drawn to his thinking, his kindness, his innocence, his intelligence, his straight-forth ways, his need for literal thinking yet understanding the need to learn metaphoric speech.
I was most definitely drawn to Marcelo.

I plowed through this book not because the pace was quick or that I desired to be done with the read. I plowed through because I needed to keep reading, I needed to know the conclusion of Marcelo's summer, I needed to know that all would be alright. The pace was not fast as nothing with Marcelo moves quickly; he thinks, he ponders. Yet, the story did not drag, it was not dull. It was full of life, and discoveries. There were several moments that I thought I would like to know someone like Marcelo, a person such as him would be a gift. I must mention Marcelo’s parents; I liked them. They were different in their approach towards Marcelo, but they each had his interest at heart. They are involved.

I will not tell you anymore, but to say…
Marcelo in the Real World is a beautiful story, a story that touched my heart.



Friday, April 23, 2010

A Game of Thrones by George R.R. Martin

_DSC0035 A Game of Thrones:
Book One of A Song of Ice and Fire
by George R.R. Martin
Copyright 1996
Bantam Spectra trade paperback reissue edition August 2005
Pages: 694
Source: Purchased book

Back Cover:
In a land where summers can last decades and winters a lifetime, trouble is brewing. The cold is returning, and in the frozen wastes to the north of Winterfell, sinister and supernatural forces are massing beyond the kingdom's protective wall. At the center of the conflict lie the Starks of Winterfell, a family as harsh and unyielding as the land they were born to. Sweeping from a land of brutal cold to a distant summertime kingdom of epicurean plenty, here is a tale of lords and ladies, soldiers and sorcerers, assassins and bastards, who come together in a time of grim omens. Amid plots and counterplots, tragedy and betrayal, victory and terror, the fate of the Starks, their allies, and their enemies hangs perilously in the balance, as each endeavors to win that deadliest of conflicts: the game of thrones.


First Sentence:
”We should start back,” Gared urged as the woods began to grow dark around them. “The wildlings are dead.”


I purchased this book a long while back; it sat on my shelf. It sat until I came across this post which reminded me of this book, peaked my interest in the book, yet again. Once I was done with the read, one of the first thoughts that ran through my head was,Oh my freakin God, I have just finished reading one of the best books that I have ever read.” Ummm, yeah, that should give you a clue as to how much I liked this book. Sure I have read a few great books, true story. But while those books were great, still are, they are not the same kind of read as A Game of Thrones, they were not fantasy reads of this caliber.

Another thing worth mentioning, I found this book utterly great; it may rank just slightly behind my most favorite series. Mind you, the jury has not quite decided yet on this ranking; need to read a few more books in the series. Anyway, if you have read my blog this past year with any regularity, you will know how much I love my most favorite series. You will also know then how much I do truly like A Game of Thrones. You will know how great I think this book is to even be thinking that it could rank right behind my most favorite loved series. All right, all right...I think you get it, but why do I think this story is so great?

The characters are awesome, they all have depth. I do not like them all, but they all are so well written. While the cast of characters is rather large, I had no problem keeping them straight as each main character had chapters dedicated to their view-point, well, except for one. I immediately liked some characters more than others, and as much as I liked some characters, I disliked others to almost the same degree. The characters that I liked, but on a lower level of like, grew on me as I learned more about them, and as their character grew.

Beyond the characters, the storyline rocked! It kicked butt as there never was a dull moment. The pace was great, I did not feel rushed nor did I ever feel like I was sludging through. When thinking about why I liked this story so much, I remembered something that I wrote about a year ago which fits this book perfectly, and more... I like fantasy books a whole lot because they contain the following elements: they take place in a unknown world and unspecified time period, mythical or magical moments happen, adventure and action, there is a hero and or heroine, and there are relationships - a bond of some sort is created.
A Game of Thrones has all those elements, and so much more beyond because of the incredible writing; the storytelling. I truly was absorbed into the story, I was mesmerized by all that was happening.

A Game of Thrones has a fantastic cast of characters, a great story, plenty of action, treachery, danger, decit, loyalty, honor, love, brutality, sex, sadness, courage, intrigue... a fantastically written story.



Side Notes: Now, after reading the first two books, I ask myself, “Why in the world, Deanna, did it take you so long to read this book, this series?” I have no answer, but I am beyond glad that I have finally read this book.

I mentioned that I like fantasy books because they contain a relationship element. Let me clarify, the relationships do not have to be “romance” in nature, for the most part, in these type of terrific fantasy books,they are not. There is human interactions that are formed through love, but they can also be formed through need, hatred, and power. For relationships to work for me, the characters must have interaction that is not one dimensional. This book most definitely gave me multifaceted relationships.

I should also mention, sex in a book is not always about romance, sometimes it is about power for which the woman is usually on the subservient end, meaning that there is rape, and horrors for women. This book certainly contains this element. It did not bother me on the whole, I read it for what it was, a time–period where women do not have rights. Thankfully this is not true for the time I live.

Do you ever mispronounce words? I do, too frequently. The biggest trouble that A Game of Thrones gave me was that I kept reading the word “thrones” as “thorns”. Yep, not good. It wasn’t even that I was actually thinking of “thorns” because I was thinking “thrones”. I just kept saying and reading “thorns”. So, with all of that said, I have very carefully made sure I wrote “thrones” instead of “thorns”. Hopefully, I caught all those mistakes. A dreadful feeling thinking that I could have possibly been saying “thorns” to people instead of thrones”. Yikes.


Other Stuff:
If you have read A Game of Thrones, well actually, the whole series, check out Francesco’s blog, Fiefdom. He is posting commentary as he re-reads this book. I am finding his posts interesting. If you are like me, reading the books for the first time, read his commentary with caution, there may be spoilers. Although, for me, at this point, I have had no problems. Hopefully that will not change, the risk I take.



Thursday, April 22, 2010

Margaret May Read-Along : The Handmaids Tale by Margaret Atwood

_DSC0017 When I saw that Bookalicio.us was hosting a read-along for The Handmaid’s Tale by Margaret Atwood, I knew that I must join in. This book has been on my TBR list for a very long time, I have been wanting to read it, meaning to read, now is the time.


For details about the Margaret May Read-Along, which starts in May, check out Bookalicio.us.


A bit about the book, from the back cover:
It is the world of the near future, and Offred is a Handmaid in the home of the Commander and his wife. She is allowed out once a day to the food market, she is not permitted to read, and she is hoping the Commander makes her pregnant, because she is only valued if her ovaries are viable. Offred can remember the years before, when she was an independent woman, had a job of her own, a husband and child. But all of that is gone now...everything has changed.



Wednesday, April 21, 2010

Special Needs: Life with IJ…

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Last Sunday, IJ experienced another fracture, this time it is a
supracondylar elbow fracture which required surgery. The surgery took place yesterday, it went well. Today, on Wednesday, he was out of sorts; pain, cranky, whiny, crabby, lethargic, bouncy, a tad agressive, happy, and lovey. He needed help: bathroom, sling, eating, playing. He needed medication, he needed sleep.

On Monday, during our “surgical consult”, we were told that children bounce back from this surgery rather quickly. Matter of fact, he most likely would be able to go back to school on this day. I am glad that I stayed home from work, IJ did not go back to school, IJ did not go along with what the “usual kid” does. He is fine, he will be back to himself soon, I know. In 6-8 weeks the cast will come off, he will play, he will swim, he will bike, he will run. In the meantime, life will be a bit different.

Yes, many children suffer fractures, why did I place this under the “special needs” title? The reason, IJ is unable to adequately express himself to others, he does have aggressive tendencies. I found that I needed to tell medical staff this, explain him. I don’t like to explain him to strangers. It is hard to explain him, it is hard to explain IJ in a nutshell. There is not one word to sum him up, there is not one sentence to explain. I do my best, to give information that is needed in the most concise why, usually, “he has limited verbal communication, he can be a bit aggressive.” Or how about when he is kicking the blanket off, grunting, squishing his eyes, kicking, I must say, “he does not want the blanket on him.” Dealing with medical emergencies, surgery, etc requires others to be aware of IJ’s special needs. What I have discovered, IJ does pretty well in these settings, and not all those in the health care get him – that is okay because those who actually took care of him did well.

Currently, while I write this, IJ is sleeping – a good thing. I hope tomorrow will be a better day for him. I know that he is suffering from pain. IJ has a high pain tolerance, hardly ever complains of pain even when another would. He is complaining of pain these last few days. He will be staying home from school tomorrow; he will stay home until I know he is pain free.

I have been writing a bit about IJ and his injury on my photo blog, ME. I have been posting my photo-a-day along with his updates. If you would like to read a bit more about IJ, you can read: April 19, 2010 and April 20, 2010

The photo above is from where IJ fell, either from the tree or that darn swing set.

I will place updates within this post, and over at my photo blog.

Thank you to all who sent their well wishes. It has been appreciated.



The Amaranth Enchantment by Julie Berry

_DSC0038 The Amaranth Enchantment
by Julie Berry
copyright 2009
Pages 306
Source: Library copy

Back Cover:
When Lucinda Chapdelaine was a small child, her parents left for the royal ball and never returned. Ever since, Lucinda has been stuck in perpetual servitude at her evil aunt’s jewelry store.
Then, on the very same day, a mysterious visitor and an even more bizarre piece of jewelry both enter the shop, setting in motion a string of twists and turns that will forever alter Lucinda’s path.
In this magical story filled with delightful surprises, Lucinda will dance at the royal ball, fall under the Amaranth Witch’s spell, avenge her parents’ death, and maybe — just maybe — capture the heart of a prince.


First Sentence:
I was sweeping the shop when a glimmer between two floorboards caught my eye.


A sweet tale that enchanted me throughout the whole read. The story was told from the view-point of Lucinda, and I could not help but like and cheer for her. She is a kind, and loving girl who keeps her wits about even when she is faced with danger and loss. I truly did like her, how could I not?

Simply put, The Amaranth Enchantment was a wonderful, and clean YA read.
I liked this delightful story.




Sunday, April 18, 2010

It’s Monday! What Are You Reading? April 19, 2010


WhatAreYouReading

What Are You Reading?

This fun weekly event that is now being hosted by Sheila at One Person’s Journey Through a World of Books.
For this event, participants post about books completed last week, currently reading and plan to read for this coming week.

Check out One Person’s Journey Through a World of Books to see what others are reading.



It seems that Monday is going to be one crazy day as my 6-year old fractured his elbow on Sunday, and surgery is in order. Shall see how the next few days progress. Depending on how things go, I may not be around much in the way of comments and blog reading. I do have a few posts already planned and ready to be posted so this week will not be completely on hold.



Last week : Finished and Reviewed

Daniel Isn’t Talking by Marti Leimbach
This was an excellent book that tore at my heart.
You can read my review
here.



This week’s Line-Up:

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Greener Grass by Caroline Pignat
I am not certain where I first heard of this book, but I am certain that this book sounds very interesting, to me. Historical fiction set in Ireland, in the mid-1800s sounds to me like a good setting, and time period. The story of 14-year old Kit sounds intriguing. I think it would be fantastic if this turns out to be a good young adult read.

A Clash of Kings by George R.R. Martin
This is the second book of the Song Of Ice And Fire series.
I am currently on page 500
This book is fantastic! I really do believe I have found another outstanding series.

Every Woman’s Guide To Cycling by Selene Yeager
Nope, I am not done with this book yet. That is okay as I am picking it up here and there. I am continuing to find this book very informative. I am glad that I gave this book a go.



What are you reading this week?



Thursday, April 15, 2010

Daniel Isn’t Talking by Marti Leimbach

_DSC0333 (2) Daniel Isn’t Talking
by Marti Leimbach,
copyright 1999
Pages: 275
Source: Library Copy
Read for the
Autism Awareness Challenge

Back Cover:
Marti Leimbach's new novel takes the reader to London, to the home of the Marshes: Stephen Marsh, a true Brit; Melanie, a transplanted American; and their two children, four-year-old Emily and Daniel, just three. When it is conveyed that Daniel is autistic, the orderly life of the Marsh family is shattered." "Melanie is determined to fight to teach Daniel to speak, play and become as "normal" as possible. Her enchanting disposition has already helped her weather other of life's storms, but Daniel's autism may just push her over the brink, destroying her resolute optimism and bringing her unsteady marriage to an inglorious end



First Sentence:
My husband saw me at a party and decided he wanted to marry me.


Exceptional!
There…that is my review. Can I stop there, and just say, read the book – you judge. I suppose I cannot.

Daniel Isn’t Talking tore at my heart. I felt Melanie’s emotions, I felt her struggles. I have read a few other reviews that mentioned that the book’s focus was too much on Melanie, and her emotions, or that she was not believable. For me, she was believable, and the book is centered on Melanie, that is the point of the book, how one mother comes to terms, and deals with the life of a child who has autism.

The thing about autism is that there are degrees of severity. Not only that, each family has different capabilities and resources available, both of which are vitally important as to how a family will cope. Not only the family though, but the child him/herself. I think this book points that out, although, I did feel that Melanie was very lucky with being able to provide what she could for Daniel. I think she was on the upper-crust of society, it was easier for her, yet she still struggled because it was not handed to her. That is another thing I liked about the book, it pointed out how it is up to the parent to search, and glean out information AND then not back down until she is able to access the appropriate help for the child. That is hard, that is an emotional rollercoaster.

Yes, Daniel Isn’t Talking touched me in several ways. Yes, I may be touched differently since I have gone through a few similar struggles. Yes, I do think others should read this book for the potential to gain a bit of insight into the world of a parent with a special needs child, an insight of the possible emotional and financial struggles.


The following are just two passages of many that tore at me, had tears racing down my face.

“Of course I did. I called several.” this isn’t true but I have no other excuse. He wants us to go to some sort of business dinner-party thing tonight, and there is no way – no way whatsoever – that I’m going with him. “I’m sorry,” I say. And I am sorry, too, but not because I don’t want to go out tonight. The truth is I feel self-conscious. I don’t want people to see how fretful I am, how troubled. I used to love to go out, but now it is as though I’ve lost all capacity to speak to other people at such things as dinner parties. They always seem so well adjusted and normal to me, making me feel even weirder. “I’m not myself lately,” I tell Stephen.

The following passage, in particular, had me sobbing. Why? The fact that a stranger saw Melanie, knew what she was going through, offered her kindness with her words was incredibly touching! I thought, yes, someone else knows AND is willing to tell you…it is okay!

I just want to go home, but I cannot, because of coarse I have to pay for all these groceries, which means somehow I have to get through the checkout line. I can only hope I have enough biscuits to do so. And that is when a woman in a bright green coat walks up to me with a smile….. I am used to people making comments about my kids – or rather about Daniel – and I prepare myself for what she might say…. But instead she stops before me and looks at Daniel, then me.
”He’s lovely,” she says.

That passage goes on in more depth, but I could not write two pages worth. PLUS, I thought the simple words, “He’s lovely” highlights the enormity of what this stranger just did….she acknowledge Melanie’s son in a positive way, with kindness.

There is hope in the special needs world, but there are many emotions, and struggles. All of these factors vary from one person to the next, from one family to the next.

Daniel Isn’t Talking did an excellent job highlighting one mother’s struggle, and hope.



Wednesday, April 14, 2010

Concerts! Concerts! Concerts!

In the past thirty days, I have attended three concerts, and one basketball game. Okay, the basketball game has nothing to do with my post title, just had to throw it in to mix to help reflect how much I have been out and about.

First, for almost all these outings my parents have been a huge help. They have willing, with no hesitation, watched the children, more specifically, IJ and GD. Thanks Mom and Dad!

With out further ado….


Muse
March 12th at the United Center in Chicago.

Muse-209-press-shot
[
uncredited group press shot via Muse]

Muse is, at this point in time, my favorite band with Coldplay right behind. I never tire of listening to Muse, much to my 14-year old daughter’s distress. In my opinion, they really do rock! I am very glad that I was able to see them live. They put on a great show. The opening, and closing songs were great, each are amongst my favorite songs. The concert was incredible, to say the least. They entertain, and jam the whole entire time! Matt (lead vocals) completely rocks, and Chris (bass) is way cool! Let me not forget Dom (drums) who I think is incredible! I also was blown away by their set, simply amazing. The laser light show is something to be seen, as well. Robert, who came along because he had no other choice, was blown away by the laser lights! He does not like Muse, but after the show, and watching the live DVD (HARRP) several times by my request, he has come to appreciate their talent. I also saw the show with Benji and Randie. They are not fans either. They attended because they like to go to concerts. Randie said that she liked the show, Ben was a bit grumpy, but he had a fracture in his foot (did not know that at the time). Sure, our seats were far away, and that was a bummer, but still I am glad I went to this show. I would, in an instant, go see Muse in concert again, but if there is a next time, I do hope I have much closer seats! I think it would be beyond amazing to see these guys up close.
Muse was excellent; they certainly have amazing energy!

The following is the best photo I have from the concert.
Hard to tell, but their set was incredible. I can see it clearly in my mind’s eye, but to accurately describe the awesomeness, I cannot.

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A couple of videos from the show I saw, videos not mine.
The band most definitely knows how to jam! Loved it!


The following video was the show opening. It was an amazing opening, the video does not do it complete justice. The song starts around the 2:55 mark.




David Garrett
March 18th at Park West in Chicago

13_david_garrett3_m
(uncredited photo found on Stripped bare to the bones)

The week prior I saw a smokin’ rock band, not even a full week later, I see an incredible violinist who knows how to put on a fantastic show! Last year, when I first heard of David Garrett, I knew that I liked his music a whole lot. Seeing him in concert confirmed that he is amazing and very talented. However, I cannot lay claim to being his biggest fan in my family. That claim goes to my Mom, she loves David Garrett’s music. This is what she told me after the concert: “We had terrific seats, and got to really feel his energy as he played with such emotion. I loved the concert.” What more could I ask for… a very happy Mom, great time spent with Darcy, Jody and EM. We had fun walking around the city neighborhood, ate a great pasta dinner, and Mom snagged us great seats – as close to the stage as possible. I will admit, at first, the seats made me very uncomfortable – being so close- but as the concert continued, I grew to appreciate our seating, although I kept thinking that this was how close I should have been when I saw Muse, just thinking.

The photo shows that we did sit right next to the stage; Darcy, EM and I are leaning against the stage.
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The concert was fabulous. If you ever have the opportunity to see David Garrett, grab the ticket and go! My Mom hopes he comes back again to Park West, so do I.

The following is not video from our show, but it is one of the songs he performed.




20100325_rockstarNever Shout Never – the headliner for the AP Tour which also featured The Summerset, Every Avenue, Hey Monday, The Cab.

April 11, 2010 at The Rave in Milwaukee

If it were not for ED, I would not have attended this concert. She loves the band (really, it is the one guy), Never Shout Never. I will admit, I do like his music. He may not be my first choice for listening, but when listening to his music I can appreciate and sing to the tunes.
The Rave reminded me of my concert going days when I was 18-20, and I would go with my brother, his friend, and my friend to see different bands. The Rave reminded me of one venue in particular, a bar that held an all-age concert. I do not remember the band, but do remember it was a metal group with the big hair and all that. I remember having a great time. I remember the darkness, and atmosphere of the place. The Rave reminded me of this which actually felt a bit weird because now I seem to be on the opposite end of things – bringing my 12-year old daughter to a concert, she hangs out with her friend at the balcony rail while we
(Robert and I) seem to have found seats in the “parents section” as we deemed the area. The show was a hoot in the sense that we were witness to hundreds of teen girls whooping and hollering for groups that we had no clue who was who, but they seemed to know. The first four bands were okay, a bit loud. Actually, way too loud. As Robert said, it seemed like they all had egos and wanted their instrument to be the loudest. Now, that may not be true, but it is true that is how it sounded to us. Still though, amongst the four starting bands, I was able to catch glimpses of promise in several. For me, I liked Hey Monday best out of the four. They rocked, and their lead singer (a chick, by the way) was incredible with her energy, and I could actually hear her sing – bonus! Robert liked The Summerset, I thought they were so-so. I liked The Cab next, but not close to Hey Monday.

Never Shout Never was awesome!

uke
(photo found on photo page at NeverShoutNever)

Christofer Drew, 19 or 20 years old, knows how to put on a show. He most definitely has energy. His songs are catchy, and I could hear all of his words! His band did not sound like they were trying to drown each other out, they sounded very good. Matter of fact, I would not mind going to another concert to see Never Shout Never. The problem, I am not in his age demographic, that is for sure. To see him again, I must bring along ED or EJ and a few of their friends, then my going would be cool. (very big smile) Seriously though, Never Shout Never was worth the show, his music was good! Too bad the boy was sick, and cut his show a bit short. That did not seem to bother ED, which means, it did not bother me.

Side note: I wrote a post Never Shout Never several months back, you can read it here.

Okay, the quality of these videos suck, but they do give you a flavor of the concert, the crowd, and their enthusiasm for Never Shout Never.

Much better videos…




Monday, April 12, 2010

It’s Monday! What Are You Reading? April 12, 2010


WhatAreYouReading

What Are You Reading?

This fun weekly event that is now being hosted by Sheila at One Person’s Journey Through a World of Books.
For this event, participants post about books completed last week, currently reading and plan to read for this coming week.

Check out One Person’s Journey Through a World of Books to see what others are reading.



This was my first weekend off from work since, well, I don’t remember when my last full weekend off since I visited my brother in Israel back in 2008. It has been a long time. I had a great weekend, it was jammed packed with family activity. On Saturday, we celebrated my
nephew's 1st birthday. Sunday brought Robert and I to a concert with our 12-year old daughter and her friend. It was an interesting experience. Actually, I liked the headliner a whole lot, the rest of the show was okay. This week, I will post about my run of concerts for the past month. Today, I am a bit sleep deprived, self-induced. Why? I became utterly absorbed in a book, a book that I could not put down even for sleep. More on that later.



Last week : Reviews Posted

Fireworks Over Toccoa by Jeffrey Stepakoff
A wonderful book for those who are looking for quick read.
My review can be found here.
5 Minutes for Books is hosting a review link-up.


The Late Talker: What To Do If Your Child Isn’t Talking Yet by Marilyn C. Agin, M.D., Lisa F. Geng, and Malcom J. Nicholl
This book is most definitely a treasure chest of knowledge for parents. This knowledge has given me clearer understanding for which I hope will enable me to be a far better advocate for my son.
My review can be found here.


Fallen by Lauren Kate
I enjoyed the story immensely, and was quite satisfied once finished.
My review can be found
here.



Last Week: Books Read

The Amaranth Enchantment by Julie Berry
I really enjoyed this book. The story was enchanting, indeed.
My review will be posted soon.In the meantime, do not remember
whose blog I saw the review for this book. I know it is someone’s blog that I read frequently. I usually keep track of stuff like this, but for whatever reason, this one has escaped me. It is bugging me, so, If you reviewed this book on your blog, please let me know. Or, if you know the blog that reviewed this book, please let me know. Thanks.



Last Week: Books Put Aside

The Wind-Up Bird Chronicle by Haruki Murakami

I had to put this book aside, not because I wanted to, nope. My oldest daughter has laid claim to the book, at least for April. She chose this book to be the read for her literature class assignment. She is hogging the book, terribly. I must wait. The good news, I am glad she is reading this book. I do like Murakami’s writing; I hope she does too. Plus, I will read the book to complete by the May deadline for the Japanese Literature Read-Along hosted by Tanabata of In Spring it is the Dawn.


Omnivore’s Dilemma by Michael Pollen
I once, in a life long ago, was pretty good at keeping track of stuff, and due dates. I once, in a life long ago, was an organized person. This book proves how those two life factors has waned. I had to return Omnivore's Dilemma to the library. In my so every organized mind, I did not remember that the book was due back…last week. Plus, I could not renew as it has a hold. Bummer!!! I must wait, or should I buy? No, I will wait, for now.



This week’s Line-Up:

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Daniel Isn’t Talking by Marti Leimbach
I have actually finished this book. I finished in the wee hours of this day, about 430 am to be precise. This book is that good!! One word, Excellent!
My review for this book will be posted this week.


A Clash of Kings by George R.R. Martin
This is the second book of the Song Of Ice And Fire series.
I am currently on page 142
Here is the thing, I loved the first book, and am greatly liking this book! I really am thinking that I may have just found a series to rival my…well…I will save that thought for later.


Every Woman’s Guide To Cycling by Selene Yeager
This year, I have a strong desire to bike in a more serious manner than in the past. I have already started cycling, and I have realized a few things: I don’t know much about bikes, and I need understanding – some guidance. So far, I am finding this book to be very informative. Not only that, I do not find the writing dry at all, matter of fact, I feel like Yeager is conversing with her reader.



What are you reading this week?



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